Books and More

Books and other Reference Materials


Babyface: A story of Heart and Bones: A mother’s inspiring memoir chronicles the life of her son Nathaniel.  Nathaniel was diagnosed with Apert Syndrome a condition where he has no facial bones.  Miraculous Surgery performed by Dr. John Mulliken. or  This book was previewed by NOVA Executive Director, Karla L. Hall  for the publisher.  Karla recommends this book for any parent with a child with medical needs.


Cosmetic Laser Surgeryby Tina Alster, MD:  A patient guide to cosmetic laser sugery.  or


Funny Face by Debbie Breslow:  The touching story of her son, Kenny.  Diagnosed with a facial AVM.  Debbie is the author and advocate for facial deformity issues.


Sturge Weber Syndrome:Edited by Karen Ball:  The Resource Guide for a Season and a Lifetime,

NEW 2010

100Questions and Answers about Vascular Anomalies:  Francien Blei, MD and Carlita Anglin, MSIS  All the answers to all your questions about vascular anomalies.  A one of a kind book and a must resource to anyone with a vascular anomaly. or 1-800-832-0034 



Other Books:

Gianna’s Wild Strawberry:

Every Crooked Pot: A novel by Renee Rosen

Marked for Life:  Joie Davidow, A story of Discover and redemption,



Cover Blend by Exuviance: Neostrata Company.





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