| There are several ongoing Research Studies investigating both the cause and development of Vascular Anomalies. NOVA reviews the medical literature for current information concerning vascular anomalies and reports this information in our newsletter and on this web site. Some of this research includes open enrollment studies and registries. |
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| NOVA works with the different independent research centers to bring this information to the NOVA families. |
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| NOVA receives no support or compensation for the listing of research or registries. |
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| Links to Vascular Anomaly Research and Registries |
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| PHACE Syndrome Registry |
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| Rare Benign Tumor Registry |
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| PHACE Syndrome Outcome Study |
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| PHACE Doppler Imaging Study |
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| Genetic Basis of PHACE |
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| Hemangioma with Low Platelet Levels and GI Bleeding |
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| International Multifocal Lymphanciomaenotheliomatosis with Thrombocytopenia |
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| Rapamycin Safety in Complicated Vascular Anomalies. |
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| Please do not contact NOVA about enrollment in any of these studies. Contact the research study directly at the links provided above. Some links will navigate away from the novanews.org web site. Information on web sites other then novanews.org is out of the control of NOVA. |
| NOVA provides this information as a resource. It is not intended to engage in the practice of medicine or to replace the physician. NOVA does not claim to have medical knowlege. NOVA does not endorse any particular physician, treating facility or treatment protocol. In all cases NOVA, the NOVA Board of Directors and associates recommends that you seek the opinion of a physician experienced in the diagnosis and treatment of hemangioma and vascular malformations. rev. 12/2016 |
