Support Groups

 

About Face

 
Rickie Gill Executive Director  
PO Box 969  
Batavia, IL 60510-0969  
888486-1209  
aboutfaceusa@comcast.net  
www.aboutfaceusa.org  
   
   

Angioma Alliance

 
Quaker Meeting House Road  
Williamsburg, VA 23188  
www.angiomaalliance.org  
   

Anomalie Vasculaire:

 
http://www.anomalievasculaire.org/  Founded in Quebec by Lisa Doust this organization partners with NOVA and other US based groups to bring support and information in French.
   
 

Cleft Advocate

 
 Debbie Oliver Program Coordinator  A program of About Face USA
702-769-9264 Includes Pathfinder Counselors to help bridge the gap between the medical community and families
debbie@cleftadvocate.org  
www.cleftadvocate.org/  
 

The Cleft Palate Foundation

 
 104 Estes Ddrive Suite 204  
Chapel Hill, NC 27514  
188-24 Cleft  
cleftline@aol.com  
www.cleftline.org  
 

Cloves Syndrome Foundation

 

http://clovessyndromefoundation.org/

 

 

 

 The CLOVES Syndrome Foundation is focused on improving the lives of CLOVES patients by funding Overgrowth and Vascular Anomaly research.  Our foundation is committed to raising public awareness and providing member support by offering educational literature and resources while also establishing support networks within the medical and overgrowth communities”;
   
 

 Cloves Syndrome Community

   
PO Box 406 West Kennebunk, ME  04094
 
 207-281-2130

http://www.clovessyndrome.org/

 Cloves Syndrome Commuinty provdes support, information and hope to children, families and their loved ones.  The CSC was developed with the understanding that when patients, and parents are empowered and connected with others facing similar challenges, they will be better equipped to support their child or their own medical, emotional and physical needs. 
 

Faces-The National Craniofacial Association

 
PO Box 11082  Chattanooga, TN 37401  
1-800-332-2373  
www.faces-cranio.org  
Stephanie Hale Program Director  
   

Healing the Children

 
PO Box 420 Butler, NJ 07405  
973-838-7114  
Fax 973-492-8299  
   
www.Htcmlantic.org  
htcmid@verizon.net  
   
   

Hemangioma Treatment Foundation

 
Dr. Marcelo Hochman Founder  
2097 Henry Tecklenburg Drive  
Suite 212 West  
Charelston, SC 29416  
843-571-7194  
   
info@hemagniomatreatment.org  
   
www.hemangiomatreatment.com  
   

KT Foundation

 
Mark Metcalf- Executive Director  
PO Box 205  
Lakeview, NC 28350  
910-949-3054  
ktfoundation@earthlink.net  
www.ktfoundation.org  
   
   

KT Support Group

 
4610 Woodale Ave  
Edian, MN 55424  
952-925-2596 Judey Vessey Contact  
623 975-6902 Kathy Temonto AZ state contact  
www.k-t.org  
   
 

Love Without Borders

 
www.jesus4you.com  
   

Lymphatic Research Foundation

 

 
 40 Garview Point Rd Glen Cove NY   
 www.lymphaticresearch.org  
   

Lymphangiomatosis & Gorham’s Disease Alliance (LGD Alliance)

 
19919 Villa Lante Place  
Boca Raton, FL 33434  
Phone: (561) 441-9766 (8:30 a.m. – 5 p.m. EST, Monday – Friday)  
Email: info@lgdalliance.org  
www.lgdalliance.org  
   

NORD-National Organization of Rare Disease

 
PO Box 8923
New Fairfield, CT 06812-8923  
203-746-6518  
www.raredisease.org  
 

Sturge Weber Foundation

 
Karen Ball Executive Director  
PO Box 418  
MT Freedom, NJ 07970  
http://www.sturge-weber.org/  
   
   
   

 Vascular Birthmark Foundation

 
Linda R. Shannon, PhD Founder  
www.birthmark.org  
 PO box 106 Lantham, NY  12110
   

Volunteer Center of Greensboro

 
 336-373-1633  
info@volunteergso.org  
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
   
Revised list 07-2011  
NOVA is a 501c3a organization. All donations are tax deductible. NOVA was originally founded as Hemangioma Newsline.
Contact Web Master: Admin@novanews.org     PO Box 38216 Greensboro, NC 27438-8216


This website is certified by Health On the Net Foundation. Click to verify.