Support Groups
About Face |
Provides information and support for individuals with | ||||
| Rickie Gill Executive Director | a facial disfigurement and to their families | ||||
| PO Box 969 | |||||
| Batavia, IL 60510-0969 | |||||
| 888486-1209 | |||||
| aboutfaceusa@comcast.net | |||||
| www.aboutfaceusa.org | |||||
Angioma Alliance |
Provides information and assistance to those affected by cavernous angioma of the brain and spine. They are dedicated to improving the lives of those affected by this | ||||
| Quaker Meeting House Road | type of vascular anomaly. | ||||
| Williamsburg, VA 23188 | |||||
| www.angiomaalliance.org | |||||
Anomalie Vasculaire: |
French Website dedicated to assisting French Speaking patients and contacts | ||||
| http://www.anomalievasculaire.org/ | |||||
Cleft Advocate |
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| Debbie Oliver Program Coordinator | A program of About Face USA | ||||
| 702-769-9264 | Includes Pathfinder Counselors to help bridge the gap between the medical community and families | ||||
| debbie@cleftadvocate.org | ONE-ONE Peer Couselors | ||||
| www.cleftadvocate.org/ | |||||
The Cleft Patate Foundation |
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| 104 Estes Ddrive Suite 204 | |||||
| Chapel Hill, NC 27514 | |||||
| 188-24 Cleft | |||||
| cleftline@aol.com | |||||
| www.cleftline.org | |||||
Cloves Syndrome Support |
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| www.clovessyndrome.org | support for Congenital Lipomatous, Overgrowth, Vascular Malformations | ||||
| Epidermal Nevi, Spinal Skeltal Anomalies/Scoliosis | |||||
Faces-The National Craniofacial Association |
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| PO Box 11082 | |||||
| Chattanooga, TN 37401 | |||||
| 1-800-332-2373 | |||||
| www.faces-cranio.org | |||||
| Stephanie Hale Program Director | |||||
Healing the Children |
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| PO Box 420 Butler, NJ 07405 | |||||
| 973-838-7114 | |||||
| Fax 973-492-8299 | |||||
| http://users.nac.net/htcmid/ | |||||
| htcmid@verizon.net | |||||
Hemangioma Treatment Foundation |
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| Dr. Marcelo Hochman Founder | |||||
| 2097 Henry Tecklenburg Drive | |||||
| Suite 212 West | |||||
| Charelston, SC 29416 | |||||
| 843-571-7194 | |||||
| info@hemagniomatreatment.org | |||||
| www.hemangiomatreatment.org | |||||
KT Foundation |
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| Mark Metcalf- Executive Director | |||||
| PO Box 205 | |||||
| Lakeview, NC 28350 | |||||
| 910-949-3054 | |||||
| ktfoundation@earthlink.net | |||||
| www.ktfoundation.com | |||||
KT Support Group |
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| 4610 Woodale Ave | |||||
| Edian, MN 55424 | |||||
| 952-925-2596 Judey Vessey Contact | |||||
| 623 975-6902 Kathy Temonto AZ state contact | |||||
| www.k-t.org | |||||
Let’s Face It - |
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| Univeristy of Michigan | now run through the U of Michigan | ||||
| School of Dentistry | |||||
| 1011N Univeristy | |||||
| Ann Arbor, MI 48109-1078 | |||||
| 360-676-7325 | |||||
| http://desica.dent.umich.edu/faceit/ | |||||
| Email: faceit@umich.edu | |||||
Love Without Borders |
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| www.jesus4you.com | Love Without Borders Ministries, Inc. is a non-profit organization, whose purpose is to evangelize the world and transcend all denominational barriers with the Word of God. | ||||
Lymphangiomatosis & Gorham’s Disease Alliance |
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| (LGD Alliance) | |||||
| 19919 Villa Lante Place | |||||
| Boca Raton, FL 33434 | |||||
| Phone: (561) 441-9766 (8:30 a.m. - 5 p.m. EST, Monday - Friday) | |||||
| Email: info@lgdalliance.org | |||||
| Web Site: | |||||
| www.lgdalliance.org | |||||
NORD-National Organization of Rare Disease |
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| PO Box 8923 | |||||
| New Fairfield, CT 06812-8923 | |||||
| 203-746-6518 | |||||
| www.raredisease.org | |||||
Ollier Maffucci Support |
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| Ollier disease and Maffucci syndrome | |||||
| Parent to Parent USA | |||||
| http://www.p2pusa.org/ | |||||
| Proteus SyndromeFoundation | |||||
| http://www.proteus-syndrome.org/ | |||||
Sturge Weber Foundation |
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| Karen Ball Executive Director | |||||
| PO Box 418 | |||||
| MT Freedom, NJ 07970 | |||||
| www.sturge-weber.com | |||||
SNAP:Special Needs Advocacy For Parents |
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| www.snapinfo.org | |||||
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Vascular Birthmark FoundationLinda R. Shannon, PhD Founder |
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| www.birthmark.org | |||||
Volunteer Center of Greensboro |
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| 336-373-1633 | |||||
| info@volunteergso.org | |||||
