There are several ongoing Research Studies investigating both the cause and development of Vascular Anomalies. NOVA reviews the medical literature for current information concerning vascular anomalies and reports this information in our newsletter and on this web site.   Some of this research includes open enrollment studies and registries.
NOVA works with the different independent research centers to bring this information to the NOVA families.
NOVA receives no support or compensation for the listing of research or registries.
Links to Vascular Anomaly Research and Registries
PHACE Syndrome Registry
Rare Benign Tumor Registry
PHACE Syndrome Outcome Study
PHACE Doppler Imaging Study
Genetic Basis of PHACE
Hemangioma with Low Platelet Levels and GI Bleeding
International Multifocal Lymphanciomaenotheliomatosis with Thrombocytopenia
Rapamycin Safety in Complicated Vascular Anomalies.
Please do not contact NOVA about enrollment in any of these studies.  Contact the research study directly at the links provided above.  Some links will navigate away from the web site.  Information on web sites other then is out of the control of NOVA.
 NOVA provides this information as a resource.  It is not intended to engage in the practice of medicine or to replace the physician.  NOVA does not claim to have medical knowlege.  NOVA does not endorse any particular physician, treating facility or treatment protocol.  In all cases NOVA, the NOVA Board of Directors and associates recommends that you seek the opinion of a physician experienced in the diagnosis and treatment of hemangioma and vascular malformations. rev. 12/2016
NOVA is a 501c3a organization. All donations are tax deductible. NOVA was originally founded as Hemangioma Newsline.
Contact Web Master:     PO Box 38216 Greensboro, NC 27438-8216

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