AnnaMichele wrote:Hi Kelly!
My name is Anna - I'm 24 years old and was born with a venous malformation on my right cheek, neck, ear, & tongue. Growing up it was very difficult for my parents to find others who had shared similar experiences! I was passed physician to physician with no one knowing what I had or what to do. I finally found Dr. Waner in Little Rock, Arkansas when I was in high school and he was the first person who seemed to know exactly what to do - it was a wonderful relief!! I've had several laser treatments, sclerotherapy, and a large debulking surgery - it's been about 5 years since I've had anything done because my schedule in grad school is so hectic to find time for treatment.
I'm actually getting my PhD in health communication and working with NOVA and Cincinnati Children's Hospital - spending time with children who have birthmarks and their parents. It's been the most rewarding experience and it is a wonderful way to bring awareness about it. I'm glad to hear you've had a positive experience so far.
I'd love to chat more if you have any questions for me!
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