NOVA operates this public message form for purpose of the exchange of information. The message forum can be viewed by all. The forum is not intended to be used as a replacement for professional medical information and advice. NOVA encourages all users to seek the medical advice from a physician experienced in the diagnosis and treatment of vascular anomalies.
The NOVA Message Blog and NOVA Message Forums are administered by the NOVA Board of Directors and are moderated by Karla Hall, Executive Director of NOVA. There are no conflicts of interest to report for our moderator.
All users must register with a valid user name and email address. User Names do not have to be real names. Users may elect to keep email and identity private from other users. Users may delete or modify their own postings/comments at any time. In accordance with the NOVA confidentiality policy (
http://www.novanews.org/about-nova ), NOVA Administrators, Moderators or representatives will maintain patient confidentiality of all users. We will not publish identifiable information unless written authorization is given. NOVA can not maintain confidentiality of users if users post identifiable information in their own postings. For confidential correspondence with NOVA please email us at
support@mail.novanews.org.
When posting information that is not based on personal experience, please provide references/citations. (journal sources, web sites or other sources of information)
Users to the Blog and Forms must to the best of their ability post true and accurate information. We request all users to refrain from “doctor bashing” on our forms.
All postings containing links, banners, information about products and services will be reviewed by the moderator for accuracy and content. Only products or services related to health and vascular anomalies will be allowed. Any posting about a service or product must receive prior permission from the NOVA Board of Directors. Postings that did not receive prior approval will be deleted without notice.
Comments on the Blog will be approved by the moderator and then allowed to be posted. The moderator views daily. Questions posted on the blog or the forums of a medical nature will be forwarded to the NOVA Medical Director or NOVA Medical Advisors. Replies will include the name and credentials of responder. Any medical professional that is a blog or forum user must clearly identify themselves and provide credentials. All blog and forum users must behave with respect and honesty. No profanity or obscenity is allowed. Biological terminology in a medical context will not be considered profane or obscene. NO solicitation is allowed. Violators will be warned via email one time only. Further abuse will result in a banning form use. All banning will be initiated by the Moderator and approved by the NOVA Board of Directors. Blog comments of a solicitous nature will be denied permission to post.
by Karla Hall » Sat May 15, 2010 7:16 pm
Welcome Back to the NOVA message forum. We are excited to finally be able to bring you a means by which NOVA members can communicate easily with each other, ask questions and find out what is happening here at NOVA.
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Karla Hall
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- Posts: 47
- Joined: Sat May 15, 2010 12:48 pm
by HEAZSMOM » Sun May 16, 2010 1:05 am
It's wonderful to have the message forum back. I've really missed it. Thank you Karla for your continued hard work.
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HEAZSMOM
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- Posts: 1
- Joined: Sun May 16, 2010 12:59 am
by wibearmom » Tue Aug 17, 2010 10:39 pm
Sorry but I have been MIA lately what happen to the forum? I am a mother to a now 14yo name Tessa who has lymphatic malformation. So far she has had 4 surgeries and 6 OK-432 injections. She been doing great until this past month. She goes for her MRI on Aug 24th on her head and now a new place under her left arm. Not sure what the next treatment will be. But if anyone wants they can reach me at
rolingcasa@msn.com or face book Lora roling ,
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wibearmom
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by Karla Hall » Wed Aug 18, 2010 6:46 pm
Lora Great to have you back.
It took a while but we finally got the new company to find us a compatible forum for the new web site. We lost the old stuff - or most of it.
We are also on facebook. Alot of the correspondance is upated there first.
Karla
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Karla Hall
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- Posts: 47
- Joined: Sat May 15, 2010 12:48 pm
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