http://www.novanews.org Keeing you informed about Vascular Anomalies Fri, 05 Mar 2010 14:49:21 +0000 http://backend.userland.com/rss092 en NOVA Needs your Support for the next family conference! Each year NOVA recieves many inquiries concerning our next family conference. We are eager to host another conference but can not do so without your financial support. We are asking each NOVA family to send their tax deductible donation to ... http://www.novanews.org/information-from-nova/donate-for-medical-conference-for-families.html Recent Publications   A review of the medical literature leads to thousands of hits for vascular anomalies.  NOVA attempts to provide a listing of the recent literature that is relevant to the diagnosis and treatment of vascular anomalies.  Some publications provide summaries (abstracts) and others do not.  Complete articles are available on ... http://www.novanews.org/information-from-nova/literature-search-and-update-032010.html Rare Disease made the final round for the 2010 Change.org Top Ideas Contest.  This is really wonderful. We beat out hundreds of ideas to make the finals and now must reach the top 10 out of 60 final ideas.http://www.change.org/ideas/view/25_million_it_is_time_to_care_about_rare_disease   You can vote every day through March 12 - ask family and friends ... http://www.novanews.org/information-from-nova/rare-diseases-top-ideas-contest.html When looking for a physician to manage and treat, hemangioma, vascular malformation, PWS, KT, PHACES, and other vascular anomalies, there are several key things to consider. Whether you choose a large medical center, university based center or a private practice physician the center should offer a comprehensive multidisciplinary approach to treatment. ... http://www.novanews.org/treatment/vascular-anomaly-treatment-centers.html Welcome to Anna Rankin of Cincinnati.  Anna is a graduate student at the University of Cincinnati studding health communications.  She is specifically managing illness uncertainty through doctor/patient communications.  Anna was born with a venous malformation of right cheek, tongue, ear and neck.  She has been undergoing treatment since high school ... http://www.novanews.org/information-from-nova/introducing-anna.html   NOVA Media Brief 2010   NOVA and the work we do.   In 2010 NOVA is asking each family we have helped to share their story with their local media.  By sharing your personal story with your local newspaper, radio station or television station you can reach tens of thousands of individuals with ... http://www.novanews.org/information-from-nova/media-brief.html Dear Friends of NOVA: 2010 has brought some challenges to NOVA and most other charities.  The economy in the US and around the world has led to a decline in donations across the board.  At NOVA we have "tightened" our belts and have made our organizaiton work more cost effectively then ... http://www.novanews.org/information-from-nova/supporting-nova.html NOVA is moving our link on facebook from a fan page to a group page.  The new link will be-  http://www.facebook.com/group.php?gid=306674032112&ref=mf   you will need to rejoin at this new site.  We will keep the old site up for a while but please transfer as soon as you can. Karla http://www.novanews.org/information-from-nova/facebook-update.html *  Registration is now open for the 2010 Human Race, March 20, in Greensboro, NC visit the race web page for NOVA at http://www.active.com/donate/THEHUMANRACE2010/NOVAsupport At this web page you can register to participate in the 5k walk/run or sign up to donate to the race.  Donations can be mailed to NOVA ... http://www.novanews.org/human-race/register-for-human-race.html Son Pham is in Boston today having his final surgery today: Olwyn writes:  I thought I should let you knwo that Son's final surgery will be on January 12th.  It will be a long one, but Son is prepared for it.  The best part is that he will leave the hospital at ... http://www.novanews.org/family-news-and-updates/son-pham.html