http://www.novanews.org Keeing you informed about Vascular Anomalies Wed, 28 Jul 2010 19:44:17 +0000 http://backend.userland.com/rss092 en PHACE Syndrome: the Families, the Physicians, and the Facts   September 16th & 17th, 2010 Milwaukee, WI   This conference is sponsored by: Children’s Hospital of Wisconsin, Medical College of Wisconsin, the National Organization of Vascular Anomalies, and HIG (Hemangioma Investigator Group)   Schedule for the Family Conference Thursday, September 16, 2010 12:30 Registration/Event Check-In 1:00-5:00 Family Conference Following the conference: ... http://www.novanews.org/events/phace-syndrome-the-families-the-physicians-and-the-facts.html Approx dates and times: Thur, Sept 16 (1PM - 4:30PM). Family Social Event and Dinner in the evening. Fri, Sept 17 (9AM - 4PM) All day sessions - continental breakfast and lunch provided. ... The location is going to be at Children's Health Education Center in downtown Milwaukee. http://www.chw.org/display/PPF/DocID/20530/router.asp The topics and speakers are still ... http://www.novanews.org/events/phace-meeting.html The Vascular Birthmarks Foundation (VBF), the National Organization of Vascular Anomalies (NOVA), the former MSN Vascular Birthmarks Support Group, and Birthmarks.com, are excited to announce the launch of the newest vascular birthmark and anomalies treatment center in Greensboro, North Carolina on July 19th, 2010.   The Vascular Birthmark Center of North Carolina ... http://www.novanews.org/uncategorized/vascular-birthmark-center-of-nc.html Each year thousands of families search for medical care to treat a vascular anomaly.  Some have to travel out of state for care, this creates complications with health care insurance.  The few fortunate ones are able to get  authorization from the insurance companies for out of network care at in-network ... http://www.novanews.org/family-news-and-updates/cost-of-treatment.html Up until a month ago I had not heard of CLOVES Syndrome. In doing my monthly literature search I found a reference to a 2007 publication by Sapp and associates to a newly defined syndrome. This little known syndrome was identified in 7 patients in this article. Many of these ... http://www.novanews.org/treatment/cloves-syndrome.html The 18th meeting of the general assembly of the International Society for the Study of Vascular Anomalies (ISSVA) was held in Brussels April 20-24, 2010.  The meeting was nearly canceled due to the eruption of a volcano that literally shut down  air travel throughout Europe/Asia for nearly a week.  Fortunately ... http://www.novanews.org/information-from-nova/issva-2010.html Migraines, malformations and more….     There is a lot of new information coming out about Migraine headaches.  Much of this information has to do with the mechanism of migraine and the occurrence of migraine.  There is still not clear answers to these questions but the research is ongoing.  We are hoping that ... http://www.novanews.org/information-from-nova/193.html We are adding photos of vascular anomalies to the web site.  They can be found on the drop down menu of the Information Page or http://www.novanews.org/information/photos-of-vascular-anomalies. http://www.novanews.org/information-from-nova/photo-page.html If you missed the National Geographic Channel's special on Rare Anatomy: Blood,  Featuring  Friends of NOVA Son Pham and Michale Politzer you can view it now online at:  http://channel.nationalgeographic.com/series/extraordinary-humans/4214/Overview#tab-Videos/07899_00 Additional Broadcast dates have not been announced.  We are hoping for updates soon. http://www.novanews.org/information-from-nova/national-geographic-show.html 18th International Worskhop on Vascular Anomalies 21-24 April 2010, Brussels, BELGIUM Visit the ISSVA website for more information: www.issva.org http://www.novanews.org/information-from-nova/issva-2010-brussels.html