PHACE Syndrome: the Families, the Physicians, and the Facts
This conference is sponsored by: Children’s Hospital of Wisconsin, Medical College of Wisconsin, the National Organization of Vascular Anomalies, and HIG (Hemangioma Investigator Group)
The Second PHACE family Conference was hosted in Milwaukee, Wisconsin September 17-18 and was preceded by a multi-center Research Symposium. The conference was a great success.
NOVA wishes to thank all the speakers and panelists for their support of the conference and for their dedication to the field. Denise Adams, MD - University of Cincinnati College of Medicine, Cincinnati Children’s Hospital, Beth Drolet, MD – Medical College of Wisconsin, Children’s Hospital of Wisconsin, Ilona Frieden, MD - University of California, San Francisco
Maria Garzon, MD – Columbia University, Morgan Stanley Hospital, Karla Hall – Executive Director NOVA, Christopher Hess, MD, PhD – University of California, San Francisco
Jennifer Hoag, PhD - Medical College of Wisconsin, Children’s Hospital of Wisconsin, Jensen, John, MD - Medical College of Wisconsin, Children’s Hospital of Wisconsin, Craig Johnson, DO – Medical College of Wisconsin, Children’s Hospital of Wisconsin, Patricia Marik, Psy D - Medical College of Wisconsin, Children’s Hospital of Wisconsin, Denise Metry, MD - Baylor College of Medicine, Texas Children’s Hospital, Orbach, Darren, MD, PhD – Harvard Medical School, Children’s Hospital Boston, Dawn Siegel, MD – Medical College of Wisconsin, Children’s Hospital of Wisconsin
Special Thanks to: Peggy Troy, RN, MSN, President and CEO Children’s Hospital and Health System, Millwaukee Wisconsin. Adrian Baylis, PhD, CCC/SLP, Marcia Seefeldt, Children’s Hospital of Wisconsin, Jennefer Lehman, Children’s Hospital of Wisconsin and all the Volunteers that made this weekend a wonderful experience.
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PHACEing the Future: these children make the future bright!






Sandy Dutra on Wed, 25th Aug 2010 12:58 pm
Please put me on your informational e-mail.
I am a Special Education Teacher and have a granddaughter with Hemangioma. I would like to know more about what resources families can access, and what teachers should know about students with physical disabilities.
admin on Fri, 27th Aug 2010 10:43 am
Sandy: Welcome to NOVA. I am going to email you with some information. Karla
Shannon on Sun, 5th Sep 2010 3:53 pm
hi there, i was looking for som statistics on PHACE syndrome?
Thanks!
admin on Tue, 21st Sep 2010 2:20 pm
Shannon what type of statistics are you looking for.
Karla