2019 NOVA Newsletter

December 16, 2019 by  
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NOVA now has a new newsletter at Mail Chimp:



NOVA on Facebook

May 23, 2013 by  
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NOVA has two Facebook pages:  https://www.facebook.com/#!/pages/National-Organization-of-Vascular-Anomalies-NOVA/98394768856  and  https://www.facebook.com/#!/groups/NOVANews/  join us!

Blog Rules and Use

September 23, 2010 by  
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NOVA operates a public blog and message forums for purpose of the exchange of information. The blog and forums can be viewed by all. The blog and forums are not intended to be used as a replacement for professional medical information and advice. NOVA encourages all users to seek the medical advice from a physician experienced in the diagnosis and treatment of vascular anomalies.

The NOVA Message Blog and NOVA Message Forums are administered by the NOVA Board of Directors and are moderated by Karla Hall, Executive Director of NOVA. There are no conflicts of interest to report for our moderator.

All users must register with a valid user name and email address. User Names do not have to be real names. Users may elect to keep email and identity private from other users. Users may delete or modify their own postings/comments at any time. In accordance with the NOVA confidentiality policy (http://www.novanews.org/about-nova ), NOVA Administrators, Moderators or representatives will maintain patient confidentiality of all users. We will not publish identifiable information unless written authorization is given. NOVA can not maintain confidentiality of users if users post identifiable information in their own postings. For confidential correspondence with NOVA please email us at support@mail.novanews.org.

When posting information that is not based on personal experience, please provide references/citations. (journal sources, web sites or other sources of information)

Users to the Blog and Forms must to the best of their ability post true and accurate information. We request all users to refrain from “doctor bashing” on our forms.

All postings containing links, banners, information about products and services will be reviewed by the moderator for accuracy and content. Only products or services related to health and vascular anomalies will be allowed. Any posting about a service or product must receive prior permission from the NOVA Board of Directors. Postings that did not receive prior approval will be deleted without notice.

Comments on the Blog will be approved by the moderator and then allowed to be posted. The moderator views daily. Questions posted on the blog or the forums of a medical nature will be forwarded to the NOVA Medical Director or NOVA Medical Advisors. Replies will include the name and credentials of responder. Any medical professional that is a blog or forum user must clearly identify themselves and provide credentials. All blog and forum users must behave with respect and honesty. No profanity or obscenity is allowed. Biological terminology in a medical context will not be considered profane or obscene. NO solicitation is allowed. Violators will be warned via email one time only. Further abuse will result in a banning form use. All banning will be initiated by the Moderator and approved by the NOVA Board of Directors. Blog comments of a solicitous nature will be denied permission to post.

revised 9/26/2010

NOVA is a 501c3a organization. All donations are tax deductible. NOVA was originally founded as Hemangioma Newsline.
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