2012 NOVA Family Conference

NOVA is pleased to announce our 2012 Family Conference

October 5-7, 2012

Cincinnati Children’s Hospital, Cincinnati, OH

Kingsgate Marriott Hotel, Cincinnati, OH

The preliminary agenda is below- please note it is subject to change.

 

10/5

1:00 pm          Early Registration and Check-in

3-5:00 pm      Vascular Anomalies- A basic course (3:00-5:00 pm)- this session is open to everyone but is designed for the family member that is new to vascular anomalies.  It will cover a broad spectrum of the classification, diagnosis and treatment for vascular anomalies.

5:15 pm          Welcome Reception
10/6

8:00 am          Seminar Sessions We will host 7 small group sessions on a variety of topics- including, hemangioma, malformations-PWS SW, PHACE, KHE-and related, KT, Cloves and overgrowth, Venous-LM and AVM. We will also have times for larger groups session on a variety of topics- Research, Psych, Child Life, Genetics, Adults with Vascular Anomalies, Laser, Support and Advocacy. Do not worry there will not be overlap of times- you will get to go to everything you need to hear!
We will also have a dinner that night

10/7

8:00 am          Closing Breakfast- Kings Gate Marriott Hotel

Hope this helps with planning- make sure you also get your reservation at the hotel!  Feel free to email us- khall@mail.novanews.org

 

Conference Update: Hotel Reservations for the NOVA Family Conference may be made by going to www.kingsgatemarriott.com and entering the Group Code NFCNFA. You can also call 1-888-720-1299 and ask for the NOVA Family Conference room block NFC. Standard room rates are $102/night. The block begins on 10/4/2012 and runs through 10/6/2012. NOVA will not be making reservations for guests. We will have general conference registration information available soon.

Brooklyn’s Best Ball Golf Tournament

 

Thank you to Paul and Shannon for the Brooklyn’s Best Golf

Outing that supported NOVA. The money is being used for the

2012 NOVA Family Conference.

 

PHACE Syndrome: the Families, the Physicians, and the Facts

PHACEing the Future

 

 

 

 

 

 

 

This conference is sponsored by: Children’s Hospital of Wisconsin, Medical College of Wisconsin, the National Organization of Vascular Anomalies, and HIG (Hemangioma Investigator Group)

  The Second PHACE family Conference was hosted in Milwaukee, Wisconsin September 17-18 and was preceded by a multi-center Research Symposium.  The conference was a great success. 

 

NOVA wishes to thank all the speakers and panelists for their support of the conference and for their dedication to the field.  Denise Adams, MD - University of Cincinnati College of Medicine, Cincinnati Children’s Hospital, Beth Drolet, MD – Medical College of Wisconsin, Children’s Hospital of Wisconsin, Ilona Frieden, MD - University of California, San Francisco

Maria Garzon, MD – Columbia University, Morgan Stanley Hospital, Karla Hall – Executive Director NOVA, Christopher Hess, MD, PhD – University of California, San Francisco

Jennifer Hoag, PhD - Medical College of Wisconsin, Children’s Hospital of Wisconsin, Jensen, John, MD - Medical College of Wisconsin, Children’s Hospital of Wisconsin, Craig Johnson, DO – Medical College of Wisconsin, Children’s Hospital of Wisconsin, Patricia Marik, Psy D - Medical College of Wisconsin, Children’s Hospital of Wisconsin, Denise Metry, MD - Baylor College of Medicine, Texas Children’s Hospital, Orbach, Darren, MD, PhD – Harvard Medical School, Children’s Hospital Boston, Dawn Siegel, MD – Medical College of Wisconsin, Children’s Hospital of Wisconsin

 

Special Thanks to: Peggy Troy, RN, MSN, President and CEO Children’s Hospital and Health System, Millwaukee Wisconsin. Adrian Baylis, PhD, CCC/SLP, Marcia Seefeldt, Children’s Hospital of Wisconsin, Jennefer Lehman, Children’s Hospital of Wisconsin and all the Volunteers that made this weekend a wonderful experience.

 

 

 

 

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PHACEing the Future: these children make the future bright!