Veronica's Hemangioma

National Organization of Vascular Anomalies

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Providing Assistance in the Management of Hemangioma

& Vascular Malformation

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Veronica's Hemangioma

Veronica

May 2004

Birth Photo -

you can see the bottom lip looks bruised

Veronica

May 4th 2004

3 Days old

Her chin is turning pink

May 7, 2004

Her lower lip has split

May 19, 2007

At 2 1/2 weeks old

Lip has ulcerated

She was screened for PHACES by Dr. Drolet in WI. Started on Oral Steroids.

May 27, 2004

Veronica's Lip got worse. She was started on Regranex Gel

Her lip is at its worse.

June 1, 2006

July 1, 2004 Veronica's lip is healed.

By January 2005 there was evidence of involution. In March the scabs are gone on her chin and skin can be seen

May 2005

After several attempts to wean off steroids she is finally Steroid Free.

Happy First Birthday Veronica

May 2007

May 1, 2007-

Veronica's 3rd Birthday

September 2007

Veronica has had laser surgery for her facial hemangioma.

In addition to the facial hemangiomas Veronica had a tethered spinal cord which required surgery in August 2005. Signs of a tethered spin include a sacral dimple above her bottom crack, hemangioma over the spine or a tuft of hair on the spine. She recovered very well from the surgery.

Veronica has had 5 laser surgeries for her facial hemangioma.

Before Nov2006 Laser

After August 2007 Laser

After October 2007 laser

This information was provided by the parents of Veronica and posted with permission on this web site.

NOVA PROVIDES THIS INFORMATION TO FAMILIES AS A RESOURCE. IT IS NOT INTENDED TO ENGAGE IN THE PRACTICE OF MEDICINE OR TO REPLACE THE PHYSICIAN. NOVA DOES NOT CLAIM TO HAVE MEDICAL KNOWLEDGE. NOVA DOES NOT ENDORSE ANY PARTICULAR PHYSICIAN, TREATING FACILITY OR TREATMENT PROTOCAL. IN ALL CASES NOVA AND ITS BOARD OF DIRECTORS RECOMMENDS THAT YOU SEEK THE OPINION OF A PHYSICIAN EXPERIENCED IN THE MANAGEMENT OF HEMANGIOMAS AND VASCULAR MALFORMATIONS.

THIS WEB SITE IS OPERATED BY THE NATIONAL ORGANIZATION OF VASCULAR ANOMALIES BOARD OF DIRECTORS. NOVA BOARD . CONTACT WEB MASTER AT admin@mail.novanews.org.

Individual Pages are now available

These albums correspond with personal stories shared on the NOVA Message Forum- at the request and permission of the parent/guardian they have been published. Some identifiable in formation has been removed for the protection of the patient.

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Veronica's Page

lUpdated October 18, 2007

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