There are several ongoing Research Studies investigating both the cause and development of PHACES.  NOVA works with the different independent Research Institutions to bring this information to the NOVA family.  If you are interested in participating in any of these studies plese contact the clinical investigator teams.

Links to Research Studies

Doppler Imaging Study

Genetic Basis of PHACES

PHACES Registry

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PHACES has a varied presentation- NOVA is dedicated to assisting all affected by PHACES

NOVA PROVIDES THIS INFORMATION TO FAMILIES AS A RESOURCE. IT IS NOT INTENDED TO ENGAGE IN THE PRACTICE OF MEDICINE OR TO REPLACE THE PHYSICIAN. NOVA DOES NOT CLAIM TO HAVE MEDICAL KNOWLEDGE. NOVA DOES NOT ENDORSE ANY PARTICULAR PHYSICIAN, TREATING FACILITY OR TREATMENT PROTOCAL. IN ALL CASES NOVA AND ITS BOARD OF DIRECTORS RECOMMENDS THAT YOU SEEK THE OPINION OF A PHYSICIAN EXPERIENCED IN THE MANAGEMENT OF HEMANGIOMAS AND VASCULAR MALFORMATIONS. 

THIS WEB SITE IS OPERATED BY THE NATIONAL ORGANIZATION OF VASCULAR ANOMALIES BOARD OF DIRECTORS.  NOVA BOARD .  CONTACT WEB MASTER AT admin@mail.novanews.org.