Announcements from NOVA:
The primary mission of NOVA is to provide information and support for individuals affected by vascular anomalies. Vascular Anomalies is the umbrella term that includes hemangioma and vascular malformation and related syndromes. PHACE is one of those related syndromes.
NOVA held the first PHACE Syndrome Conference for families, partnering with Texas Children's Hospital November 5-7, 2008. The meeting was a tremendous success, exceeding our expectations. It was a time for families to meet, share and learn from eachother. It was a time for physicians and scientists to share the latest information on PHACE Syndrome and to answer questions from parents about PHACE Syndrome. Special thanks to Beth Drolet, Ilona Frieden, Peter Frommelt, Maria Garzon, Anita Haggstrom, Judith Hall, Christopher Hess, Geoffrey Heyer, Dawn Siegel and Denise Metry for answering all our questions.
More Conference Information
NOVA is launching a letter campaign to the NIH for the direct purpose of requesting support for funding of vascular anomaly/PHACE research. Please follow the link below to the information on how you can help with this effort.
Letter Campaign
  
PHACES has a varied presentation- NOVA is dedicated to assisting all affected by PHACES
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