December 2008

NOVA commences an online petition drive to compliment the letter campaign for PHACE research.

November2008

NOVA launches the PHACE Syndrome Awareness project to request support for funding of vascular anomaly research though the NIH.  A letter writing campaign directed at the NIH is started by PHACE families. 

NOVA held the first PHACE Syndrome Conference.  The meeting was cosponsored by Texas Children's Hospital and Dr. Denise Metry. Nearly 110 people attended or participated in the conference.

NOVA issues 1 Special Assistance grant through the FACES of PHACES campaign for a family to attend the conference in November

June 2008

Karla Hall attends the ISSVA meeting in Boston

September 2007

NOVA Launches Faces of PHACES Campaign to fund PHACES Conference to be hosted at Texas Children's Hospital November 7-9, 2008 $16,000 is raised for PHACE Syndrome related projects.

July 2007

NOVA Referenced in July 2007 Issue of Parent Magazine

April 2007

NOVA Hosts 5th Family Conference at Cincinnati Children's Hospital: Nearly 250 attend conference.  Complicated cases are presented in Medical Clinic.

NOVA Awards 2 Special Assistance Grants.  One Grant is awarded through the David Cottengim Fund and the First Caitlin Moncrief Grant is awarded.

Karla Hall Participates in the NYU Medical Center Vascular Anomalies 2007 Update on Research & Controversies in Clinical Managment.

March 2006

NOVA joins Coalition of Skin Disorders a member organization of the Society for Investigative Dermatology & the American Academy of Dermatology.

April 2006

NOVA establishes the Caitlin Moncrief Memorial for PHACES research.

NOVA grants first 2006 David Cottengim Award to patient

June 2006

NOVA awards Grant for PHACES Registry to Texas Children's Hospital, Dr. Denise Metry coordinator.  This Grant was made possible from donations to the Caitlin Moncrief Memorial.

Karla Hall Executive Director of NOVA selected to the International Society for the Study of Vascular Anomalies ISSVA.  Karla is the first member of the Patient Support and Advocacy field accepted for membership in this organization.

November 2006

NOVA cited in Child Magazine

2005

January 2005

NOVA launches 2005 Fundraising Letter Campaign to benefit the June 2005 NOVA Family Conference

April, 2005

Karla Hall Executive Director of NOVA attends Hemangioma Workshop at National Institute of Health

NOVA awards David Cottengim Award to patient at Cincinnati Children's Hospital diagnosed with PHACES

June, 2005

NOVA hosts Fourth Family Conference, Raleigh NC : Hemangioma & Vascular Malformations- More then a birthmark.  Over 200 attend conference and 60 patients are seen in the NOVA medical clinic. 

2004
New web site launched by NacWorks

March, 2004
Human Race held in Greensboro, NC. Donations to host 4th Annual Family Medical Conference. Mr. Eric Moore honored for his volunteer support of Hemangioma Newsline for the first web-site.

June, 2004

Hemangioma Newsline aids Fatemah Hussah, an Iraqi child brought to Columbus Children's Hospital by the U.S. Military.  David Cottengim grant awarded to infant and her mom.

Hemangioma Newsline Announces the Regional Family Representative Board.  The newly established board will coordinate regional awareness and activities for the organization to better serve those affected by vascular anomalies

July, 2004

Family Day held in Findlay, OH.  11 Families gather for a day of fun at the Lakeview Pool and Tennis Club.  Leslie Mertens and Carol Colombo introduced as the Central Regional Representatives for Hemangioma Newsline.

Hemangioma Newsline becomes: The National Organization of Vascular Anomalies, "NOVA"

April, 2003
Hemangioma Newsline participates in NIH Grant Application for Multi-center network under the direction of NYU.

August, 2003
David Cottengim Special Assistance Fund awards third gift to family in need.

March 2002
Hemangioma Newsline participates in sixth Human Race in Greensboro, NC.

September, 2002
Third Family Conference held in Raleigh, NC. Over 200 people attend the conference. 40 patients are seen in medical consultations with the volunteer medical teams. 5 patients attend as walk-in guests due to media coverage in the Raleigh area.

September, 2002
David Cottengim Special Assistance Fund awards second gift to a family in need.

March 2001
Hemangioma Newsline participates in the fifth Human Race..

May 4-6 2001
Second Family Conference held in Charlotte, NC. Over 200 people attend and 50 patients are seen by the volunteer medical clinic.

May 5, 2001
David Cottengim Special Assistance Fund is named and awards first gift to family in need.

September 2001
Physician Advisory Panel formed. Dr. Milton Waner, chairman, Dr. Denise Adams, Dr. Martin Mihm and Dr. Steven Fishman will advise HNL on medical issues.

2000

March 2000
Participated in our fourth Human Race, Nearly eighty people joined the walk and raised more than $15,000.00 for this one day event.

August 2000
Annual Board of Directors Meeting held in Greensboro, North Carolina. The board unanimously elects John DuBiel as its new President and Chief Financial Officer. Karla Hall was elected Executive Director and Vice President. Donna McLamb became the new treasurer and Lillian DuBiel remained Secretary. Bob Hall and Kaye Mock remained members at-large. Dr. Sean Freeman was elected to another term as Medical Director.

March 1999
Participated in our third Human Race. HNL is the leading Human Race participant this year.

April 1999
Hemangioma Newsline Inc. Received 501c3a status.

September 1999
The first Hemangioma Newsline family conference is held in Charlotte, North Carolina. The event is attended by more than 150 people. Nearly seventy patients receive free consultation by volunteer clinical teams and the nation's top physicians in the field of Hemangioma and Vascular Malformation management.

March 1998
Participated in the second Human Race. John DuBiel elected the official fund-raiser chairman. We raised over $15,000.00.

March 1998
First official meeting of Hemangioma Newsline. A board of directors was appointed. The original board: Karla Hall, executive director; Robert Hall, treasurer, Lillian DuBiel, secretary; Dr. Sean Freeman, medical director, John DuBiel, Kaye Mock and Donna McLamb members at large.

September 1998
Karla Hall is honored for her hard work and dedication at a televised black tie affair "CBS WFMY-TV-2 Those Who Care AWARDS".

October 1998
Hemangioma Newsline incorporated.

March 1997
Hemangioma Newsline became a liaison organization for the Duke University Hemangioma clinic.

March 1997
Hemangioma Newsline participates in the first Human Race.

September 1997
Donna McLamb gets recognition for Hemangioma Newsline by writing a letter to the Greensboro, News and Record. Her letter outlined the role Hemangioma Newsline played in her son's successful healing process. Donna volunteers to work for the organization.

February 1996
Lillian DuBiel and Karla Hall develop a plan to create a North Carolina based hemangioma family support group.

February 1996
Lillian DuBiel and Karla Hall publish the first Hemangioma Newsline newsletter. It is distributed to fifty families. At this point Hemangioma Newsline is an informal group of parents that share a common goal.

March 1996
Dr. Sean Freeman agrees to lend his talent and help with the newsletter and agrees to serve as the organization's first medical director.

May 1996
Kaye Mock contacts HNL and volunteers her time and talent to the organization.

August 1995  After seeing an article on Hemangioma Treatment option in the New Star Ledger, Karla Hall contacted Dr. John Reinischat LA Children's Hospital.  No one could have ever imagined that a conversation between a mother in NJ and a physician in California would result in the formation of the leading patient support and advocacy organization for Hemangioma & Vascular Anomalies.

August 1995

Dr. John Reinsch introduces Karla Hall and John DuBiel. Bob & Karla Hall and John & Lillian DuBiel network with families through the Belle Foundation, a support group domiciled in New Jersey.

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