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Hemangioma& Vascular Malformation

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  HOME  :: Vascular Anomalies   :
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Medical Research for Vascular Anomalies

 

There are several ongoing Research Studies investigating both the cause and development of Vascular Anomalies.  Many of these studies are involve registries of patients.    NOVA works with the different independent Research Institutions to bring this information to the NOVA family.  If you are interested in participating in any of these studies plese contact the clinical investigator teams.


  

 

 

 

NOVA PROVIDES THIS INFORMATION TO FAMILIES AS A RESOURCE. IT IS NOT INTENDED TO ENGAGE IN THE PRACTICE OF MEDICINE OR TO REPLACE THE PHYSICIAN. NOVA DOES NOT CLAIM TO HAVE MEDICAL KNOWLEDGE. NOVA DOES NOT ENDORSE ANY PARTICULAR PHYSICIAN, TREATING FACILITY OR TREATMENT PROTOCAL. IN ALL CASES NOVA AND ITS BOARD OF DIRECTORS RECOMMENDS THAT YOU SEEK THE OPINION OF A PHYSICIAN EXPERIENCED IN THE MANAGEMENT OF HEMANGIOMAS AND VASCULAR MALFORMATIONS. 


THIS WEB SITE IS OPERATED BY THE NATIONAL ORGANIZATION OF VASCULAR ANOMALIES BOARD OF DIRECTORS.  NOVA BOARD .  CONTACT WEB MASTER AT admin@mail.novanews.org. 

 

 

Research Index

PHACES Doppler Imaging Study

Genetic Basis of PHACE:  Dwan Siegel

Registries Index

Hemangioma with low platelet levels and GI bleeding

PHACES Registry

Rare Benign Tumor Registry

International Multifocal Lymphangiomaendotheliomatosis with Trhrombocytopenia Registry

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 
 

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lUpdated January 5, 2008

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