The CSD is a voluntary coaltion of patient advocacy groups addressing the needs and concerns of millions of people whose lives are affected by skin diseases.

The Member organizations are:

Basal Cell Carcinoma Nevous Syndrome-Kristi Schmitt, Exec Dir
Cicatricial Alopecia Research Foundation Sheila Belkin CEO
Cutaneous Lymphoma Foundation Judy Jones, Executive Director
Dystrophic Epidermolysis Bullosa (DebRA of America, Inc.) Suzanne Cohen, Executive Director
Ehlers Danlos National Foundation (EDNF) Cynthia Lauren, Executive Director
Foundation for Ichthyosis and Related Skin Types (F.I.R.S.T.)
Jean R. Pickford, Executive Director
Inflammatory Skin Disease Institute (ISDI) LaDona Williams, Executive Director
International Pemphigus Pemphigoid Foundation (IPPF)
Janet Segall, Interim Executive Director
National Alopecia Areata Foundation (NAAF) Vicki Kalabokes, President and CEO

National Eczema Association (NEA) Vicki Kalabokes, CEO
National Foundation for Ectodermal Dysplasias (NFED) Malinda Heuring, Director of Education
National Organization of Vascular Anomalies (NOVA) Karla Hall, Executive Director
National Psoriasis Foundation (NPF) Gail M. Zimmerman, President and CEO

National Vitiligo Foundation (NVF) Robert Haas, Executive Director
Pachyonychia Congenita Project (PC PROJECT) Mary Schwartz, Executive Director and CEO

The Sturge-Weber Foundation (THE SWF) Karen Ball, President and CEO
Vitiligo Support International (VSI) Jackie Gardner, Vice President

NOVA has been a member since 2006.