Son Pham
January 12, 2010 by admin
Filed under Family News and Updates
Son Pham is in Boston today having his final surgery today:
Olwyn writes:
Research and Registry Update
January 8, 2010 by admin
Filed under Information from NOVA
We have updated the research and registry information from the vascular anomaly centers.
Patients/Families: view the information under Research and directly contact the center’s research coordinator.
Physicians/Researchers: If you have a study you want us to post please contact us at Khall@mail.novanews.org. If you have a patient that you think should participate in the study and need more information please contact the Lead Investigator of the study.
Welcome from NOVA
January 7, 2010 by admin
Filed under Information from NOVA
Welcome to the new NOVA web site.
Our message forum is still active, located at http://www.vascularanomalies.org/forum/default.asp we have had some difficulty with the registration of new users. If you have a problem send us an email and we will activate your account asap. We will be making a decision to discontinue this feature in the next few months- as we move over to the blog format and use of facebook. let us know your thoughts.
