Hemangioma & Vascular Malformation

Advocacy and Support

 
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     Information and Support in the Management of Hemangioma, Vascular Malformation & Related Syndromes
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  The National Organization of Vascular Anomalies is a patient education and advocacy agency for those affected by hemangioma, vascular malformation, rare benign tumors and many related syndromes.

Traditionally these tumors and malformations have been called birthmarks. Medicine and science today dictate that they are so much more.


Vascular Anomalies: More Than a Birthmark

Vascular Anomalies include Hemangioma and Vascular Malformations. It has been estimated that up to 60% of all vascular anomalies are misdiagnosed, often resulting in inadequate and inappropriate treatment.

Hemangioma is the most common benign tumor of infancy and children.  Most develop in the first few weeks of life. These are called Infantile Hemangioma.  Others are formed at birth and are called congenital hemangioma.  Hemangioma occur in 4-10% of all children, and are more common in females then males.

Vascular Malformations are abnormally developed vessels that can occur in any of the blood vessels or lymphatic vessels.  Vascular Malformations are always present at birth but often do not become evident until later in life.

Hemangioma and Vascular Malformations are often confused and misdiagnosed.  This leads to frustration for the parents and the families of those affected.  The National Organization of Vascular Anomalies was founded to provide assistance to those individuals affected by hemangioma, vascular malformation and all related syndromes.

 The National Organization of Vascular Anomalies is a nonprofit organization providing assistance to individuals affected by hemangiomas & vascular malformations.

 

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Types of Vascular Anomalies

&

Related Syndromes- Associations

 

Venous Malformation

PHACES

PWS/

Sturge Weber

Lymphatic Malformation

KT Syndrome

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Physician List

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 Announcements from NOVA

Link- updated 4/14/2008

PHACES Conference Information- 4-7-2008

 Printable Publications

NOVA Brochure- .pdf file

PHACES Brochure-.pdf file

 

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last updated 4-14-2008

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